1) Simplified consent information for children and young people
Why are you being asked to participate?
We are conducting research on important aspects of childhood learning and development. We are also interested in developmental and acquired difficulties so that we can increase our knowledge about such difficulties. We are hoping to contribute towards the development of effective measures for people with difficulties, at all stages of their lives. That's why we need volunteer children and families to participate in our projects.
We are asking you if you would like to participate in this because your age is suitable for our projects and you may have a special diagnosis or condition that it is important to find out more about.
Taking part in such projects can be exciting, fun and interesting. You can have the opportunity to participate in different types of tasks and see how researchers work. These activities have been designed in a playful way.
What will happen if you participate?
If you agree to participate, we will ask you and your parents/guardians to write down your name, contact information and some other information about you on a PC (this may have already been done). We will ask you about your age, phone number, address and whether or not you have a diagnosis or difficulties, etc.
Once we have written down this information you will be ready.
If some researchers think that you are suitable for taking part in one of their studies, they may call you or your parents/guardians, send an e-mail or send a letter by post. They will then ask if you would like to participate in a larger project. This could include answering a few more questions, taking a test, having an examination or using some measuring devices. Even if you agree to participate now, you might not be contacted by the researchers. For example, they may have already found all the volunteers they need.
It is important to remember that the information you provide us will be your secret information and we are not allowed to share it with anyone else apart from the researchers who are cooperating with us. If you regret giving us information, you can change your mind at any time. If you do, you can click on this link and fill in your name and date of birth. We will then delete all information about you. You can also call us (+47-22856072) or send us an e-mail (learning-lab@isp.uio.no). You do not need to say why you would like to withdraw.
What will happen if you do not participate?
Participation is completely voluntary. You will not be contacted if you do not sign up.
2) Declaration of Consent (to be signed by the parents or guardians if the test participant is under the age of 18).
Request for registration in an electronic register:
Oslo Special Needs Education and Learning Lab’s (Oslo SPeLL) authorised register of voluntary research participants
This is a question about you being listed in an electronic register of people who would like to participate voluntarily in future research projects at the Department of Special Needs Education (ISP). This only applies to research projects being conducted by or in cooperation with the ISP at the Faculty of Educational Sciences, University of Oslo.
The purpose of the Register is to make it easier for ISP researchers to contact potential participants for research projects, so that as many people as possible can participate in such studies.
We are offering you the opportunity to be listed in the Register because you are potentially in the target group of the researchers with whom we work. This target group includes children and adults with or without learning and developmental difficulties.
What does the project entail?
By registering, you agree that the researchers with whom we cooperate can contact you at a future time for recruitment to various research projects. You will only be contacted if you (or your child) are suitable for the project target group, for example, based on age and diagnosis, etc.
Any future requests will give you the opportunity to accept or decline participation. Any such enquiries will also explain what the research project entails, how long it will last and what kind of tests or examinations will be carried out. You will also be presented with a new consent form for the specific project.
When you register, we will store your information in a central secure electronic register. The Register includes all your personal information and any health or other information that you have included on your registration form. If you are also recruited for and participate in future research projects through the Register, any information and research data collected during the projects may be listed in the Register and thus linked to your personal data. The consent form will contain information about this in respect of any individual future research projects.
The data we collect from your registration if you participate as a volunteer may be used as a data basis in future research at the ISP. In such cases, the data will always be anonymised, i.e. any personal information such as names and contact information will not be available to researchers who use the Register's data base.
Since the information you register with us is potentially strictly confidential, we comply with all Norwegian and international legislation and guidelines relating to the safe, secure and legal collection, storage, processing and distribution of such information. This means, among other things, that the information is processed on a computer system that maintains an extremely high degree of security and is operated by a dedicated security department at the University of Oslo (services for sensitive data). Only a few administrators who work directly with the Register have full access to the information. Researchers wishing to recruit research participants will normally only be able to access the contact information in the Register, but not health data or other sensitive personal data.
Possible pros and cons:
Pros: if you participate in the Register and are contacted by a researcher, you will have the opportunity to participate as a voluntary participant in research projects. In many cases this could be an interesting and exciting educational experience for you (and/or your child) and provide you with the opportunity to learn a little about the research behind the project. In order to develop our knowledge about special needs education, we rely on people who support our research by registering as voluntary participants (children with families and adults).
Cons: if you participate in any future research projects, you should acquaint yourself with any downsides relating to individual projects. These vary from one project to the next.
Voluntary participation and options for withdrawing consent:
Participation in the project is voluntary. If you would like to participate, please sign the declaration of consent on the last page. You may at any time, and without explanation, withdraw your consent. If you withdraw from the project, you can ask for the tests and data that have been collected to be deleted, unless this information has already been included in analyses or used in scientific publications. If you wish to withdraw at a later date or have any questions about the project, please contact one of the project's administrators:
Vasiliki Diamanti, Associate Professor/Leader at Oslo SPeLL: +47-22856624, +47-98073138, vasiliki.diamanti@isp.uio.no
Anders Lunde, Chief Engineer: +47-22858132, +47-48111273, anders.lunde@isp.uio.no
Nataliya Honcharova, Research Assistant: +47-22856072, nataliya.honcharova@isp.uio.no
The department’s data protection officer is personvernombud@uio.no.
What happens to your information?
The information registered about you will only be used as described for the purpose of the project. You have the right to access any information that has been registered about you and to have any errors in the registered data corrected. You are also entitled to see the security measures used when processing your data.
All information will be processed without names and personal identification numbers or other directly identifiable data. A code links you to your information via a list of names. Only Vasiliki Diamanti (the Project Manager) and Anders Lunde (The Lab Engineer) have access to this list.
In exceptional cases, individual researchers conducting any future examinations or tests may be made aware of interconnected personal and health information, if such is necessary for the implementation of the experimental work, or if such cannot be avoided due to the set-up of the experiment. Information to this effect will usually be provided in the enquiry and consent form relating to participation in individual research projects.
After 10 years you will be contacted and asked if you would like to remain in the Register for another 10 years. If you do not answer, or answer no, the information about you will be anonymised or deleted.
What happens to tests taken by you?
What happens to the test results or other data collected about you will vary between any research projects that you might opt to participate in. If you participate in any future projects, you will receive a new consent form explaining how they will be processed.
Legal basis and rights of appeal:
The legal basis for the Register is consent pursuant to Article 6 number 1a and Article 9 number 2a of the General Data Protection Regulation.
You have the right to appeal about the processing of your personal data to the Data Protection Officer and the Norwegian Data Protection Authority.
Contact information:
If you have any questions about the project you can contact us:
E-mail: learning-lab@isp.uio.no
Address: Office: 331, Helga Engs hus, Sem Sælands vei 7, Oslo
Or:
Vasiliki Diamanti, Associate Professor/Leader at Oslo SPeLL: +47-22856624, +47-98073138, vasiliki.diamanti@isp.uio.no
Anders Lunde, Chief Engineer: +47-22858132, +47-48111273, anders.lunde@isp.uio.no
Nataliya Honcharova, Research Assistant: +47-22856072, nataliya.honcharova@isp.uio.no
The department’s data protection officer is personvernombud@uio.no.
Continue to registration (requires MinID)
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